An EIN is a unique nine-digit number that identifies a business for tax purposes.
An EIN is a unique nine-digit number that identifies a business for tax purposes.
Organization Mission
THE NIEKRO ANEURSYM & AVM FOUNDATION(TM) IS COMMITTED TO SUPPORTING PATIENTS AND FAMILIES, RESEARCH, TREATMENT AND AWARENESS OF BRAIN ANEURYSMS, AVMS AND HEMORRHAGIC ... (More)
Rating Information
Good
This charity's score is 87%, earning it a Three-Star rating. If this organization aligns with your passions and values, you can give with confidence.
Charity Navigator's ratings previously did not consider Leadership & Adaptability, Culture & Community, or Impact & Measurement. The historic rating mainly reflects a version of today’s Accountability and Finance score. More information on our previous rating methodologies can be found on our rating methodology page.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.
Majority Independent Board Members - 100% independent members
10 out of 10 points
Industry professionals strongly recommend an independent governing body to allow for full deliberation and diversity of thinking on governance and other organizational matters. We check to see that a majority of board members are identified as independent on their tax form.
Source: IRS Form 990
Independent Board Size - 4 independent members
10 out of 10 points
Industry professionals strongly recommend an independent governing body to allow for full deliberation and diversity of thinking on governance and other organizational matters. For most organizations, we check to see if the organization has at least three independent board members. For large, donor-funded organizations, we check to see if the organization has at least five independent board members
Source: IRS Form 990
Material Diversion of Assets - None
10 out of 10 points
A diversion of assets — any unauthorized conversion or use of the organization's assets other than for the organization's authorized purposes, including but not limited to embezzlement or theft — also can seriously call into question a charity's financial integrity. We review the charity's most recent IRS Form 990 to see if the charity has reported any diversion of assets.
Source: IRS Form 990
Tax Form Disclosures and Policies
Full Credit
Partial Credit
No Credit
Website Listed on Tax Form - Listed
3 out of 3 points
Charity Navigator looks for a website on the IRS Form 990 as an accountability and transparency metric.
Nonprofits act in the public trust and reporting publicly on activities is an important component.
Source: IRS Form 990
Conflict of Interest Policy - Listed
7 out of 7 points
Charity Navigator looks for the existence of a conflict of interest policy on the IRS Form 990 as an accountability and transparency measure.
This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.
Source: IRS Form 990
Whistleblower Policy - Listed
7 out of 7 points
Charity Navigator looks for the existence of a whistleblower policy per the IRS Form 990 as an accountability and transparency measure.
This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.
Source: IRS Form 990
Document Retention and Destruction - Listed
7 out of 7 points
Charity Navigator looks for the existence of a document retention and destruction policy per the IRS Form 990 as an accountability and transparency measure.
This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.
Source: IRS Form 990
Documents Board Meeting Minutes - Yes
3 out of 3 points
Charity Navigator looks to confirm on the IRS Form 990 that the organization has this process in place as an accountability and transparency measure.
An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.
Source: IRS Form 990
Website Disclosures
Full Credit
Partial Credit
No Credit
Tax Form Posted on Nonprofit's Website as stated on Form 990 - Missing
0 out of 3 points
For almost all charities, we check the charity's IRS Form 990 to see if it discloses that the Form 990 is available on the charity's website. As with the audited financial statement, donors need easy access to this financial report to help determine if the organization is managing its financial resources well.
Source: IRS Form 990
Financial Metrics
Full Credit
Partial Credit
No Credit
Liabilities to Assets: Ratio - 2.13%
15 out of 15 points
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent IRS Form 990). This ratio is an indicator of an organization's solvency and/or long-term sustainability.
Source: IRS Form 990
Program Expense: Ratio - 63.37%
17 out of 25 points
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three IRS Forms 990). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.
Source: IRS Form 990
Additional Information
Total Revenue and Expenses - Data Available
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
Click or hover over the bar to see exact $ amount
Salary of Key Persons - Data Available
Presented here are up to five of this organization's highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting
Elizabeth Hamburg, Executive Director
$85,000
Brian Bagley, Board Secretary
$0
Jeffrey Mayer, Chairperson/president
$0
Source: IRS Form 990 (page 7), filing year 2023
IRS Published Data (Business Master File) - Data Available
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
Data Sources (IRS Forms 990) - Data Available
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage accountability and finance data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (The Niekro Aneurysm & AVM Foundation) or EIN (421740818) in the 'Search Term' field.
Impact & Measurement
Score
77
This beacon estimates the actual impact a charity has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.
The Measuring Outcomes assessment evaluates how well a charity tracks progress towards its mission's outcomes.
Displayed below are the responses provided by the charity for the Measuring Outcomes assessment. Each question is designed to address specific criteria, with responses eligible for full, partial, or no credit. Please refer to the scoring rubric for details on how responses are scored.
Selected program: Medical Research Grants, Submitted Nov-24
Program Planning and Design
21 out of 21 points
This section assesses the use of crucial evaluation tools in program objective-setting and activities.
Charity leadership uses information collected to make decisions regarding programs
Agree, uses information collected to improve programs
Charity has shared understanding across staff of how programs lead to the goals a program achieves
Agree, has universal understanding of how programs achieve goals
Charity has documents and reviews how program activities lead to change
Agree, documents and reviews
Charity revisits how program activities lead to change
Agree, does revisit how program activities lead to change
Program Development
19 out of 28 points
This section assesses the consideration of stakeholders in program objectives and activities.
Charity identifies program target population needs in the following ways
Discussions or surveys with target population on how program activities best serve their needs
Charity considers practical, cultural, and political needs and interests of those served by program
Partially agree, charity is responsive to some practical, cultural, or political needs
Charity uses SMART Goals
Agree, identified Specific, Measurable, Achievable, Relevant, and Time-Bound (SMART) goals
Data Collection and Analysis
11 out of 21 points
This section assesses the best practices used in collecting and analyzing program data.
Charity tracks program information in the following ways
Collects data when a program is complete
Charity collects programmatic information on those served by the program in the following ways
Collects information about the quality of service from the target population
Charity assesses program effectiveness at multiple points in time
Agree, collects information before and after a program is implemented
Reporting and Distribution of Results
21 out of 21 points
This section assesses reporting and disseminating program results.
Charity reports program results to key stakeholders
Reports results to stakeholders
Does not report results to stakeholders
Charity reports both favorable and unfavorable results
Yes, charity reports both favorable of unfavorable results
Use of Results
6 out of 10 points
This section assesses the use of results to guide learning.
Charity uses program results to inform future work for the following reasons
Improve program operations
Understand the impact of their work
Inform how we create future programs
Culture & Community
Score
86
This beacon provides an assessment of the organization's culture and connectedness to the community it serves.
Does your organization collect feedback (i.e., perceptions, opinions, concerns) from the people meant to ultimately benefit from your mission?
Yes
Feedback Usage
100 out of 100 points
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences
To identify bright spots and enhance positive service experiences
To make fundamental changes to our programs and/or operations
To inform the development of new programs/projects
To identify where we are less inclusive across demographic groups
To strengthen relationships with the people we serve
To understand client needs and how we can help them achieve their desired outcomes
Practices
100 out of 100 points
Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually
We take steps to get feedback from marginalized or under-represented people
We aim to collect feedback from as many people we serve as possible
We take steps to ensure people feel comfortable being honest with us
We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.)
We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.)
We engage the people who provide feedback in looking for ways we can improve in response
We tell the people who gave us feedback how we acted on their feedback
Challenges
100 out of 100 points
What challenges does your organization face in collecting feedback from the people you serve?
It is difficult to get people to respond to requests for feedback
We don’t have the right technology to collect and aggregate feedback efficiently
Equity Strategies™
79 out of 100 points
67% of Culture & Community score
Full Credit
Partial Credit
No Credit
Equity Strategies™ - Number of Data, Policies & Processes
79 out of 100 points
This organization's score of 79 is a passing score. The organization reported that it is implementing 4 Equity Practices.
The Equity Strategies™ checklist, developed by Equity in the Center™, consists of data, policies & processess that promote racial equity in operations and programs. The Equity Strategies™ were developed by Equity In The Center®, and collected in partnership with Candid.
Equity Data (1/7)
We review compensation data across the organization (and by staff levels) to identify disparities by race.
We ask team members to identify racial disparities in their programs and/or portfolios.
We analyze disaggregated data and root causes of race disparities that impact the organization/'s programs, portfolios, and the populations served.
We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
We disaggregate data by demographics, including race, in every policy and program measured
We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Equity Policies & Processes (3/7)
We use a vetting process to identify vendors and partners that share our commitment to race equity.
We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
We have community representation at the board level, either on the board itself or through a community advisory board.
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission.
THE NIEKRO ANEURSYM & AVM FOUNDATION(TM) IS COMMITTED TO SUPPORTING PATIENTS AND FAMILIES, RESEARCH, TREATMENT AND AWARENESS OF BRAIN ANEURYSMS, AVMS AND HEMORRHAGIC STROKES. PROVIDE EDUCATION ON THE RISK FACTORS, CAUSES & TREATMENTS OF THESE CONDITIONS, WHILE FUNDING NEUROLOGICAL RESEARCH
Vision Statement
10 out of 10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization's vision.
The Joe Niekro Foundation strives towards a world with better outcomes and increased support for pat
Strategic Goals
20 out of 20 points
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: Grow our current support groups and restart groups in areas that shut down due to covid.
Goal Two: Continue to fund medical research grants that provide better outcomes for patients.
Goal Three: Provide additional resources to patients that help them cope and thrive.
Leadership
30 out of 30 points
Full Credit
Partial Credit
No Credit
Investment in Leadership Development
15 out of 15 points
The nonprofit provides evidence of investment in leadership development.
JNF Executive Director regularly attends trainings for non-profit leaders and is consulting with a non-profit training organization to receive one-on-one coaching. We are also working on volunteer training for our patient program leaders and investing in recognizing them.
External Focus on Mobilizing Mission
15 out of 15 points
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Collaborative Engagement
Social Promotion
Civic Engagement
Adaptability
30 out of 30 points
Full Credit
Partial Credit
No Credit
Adaptability Statement
30 out of 30 points
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
Our organization is seeing the effects of the pandemic on our volunteers and the individuals we serve. We're working hard to increase mental health resources as they relate to AVM and aneurysm patient and caregiver experiences. We are working to restart support groups that stopped meeting during the pandemic. We also realized that our supporters were ready for in-person events again and hosted one of our most successful galas ever.