Support Charity Navigator

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Omslife Foundation Inc.

Mission

Our mission is to raise awareness of Opsoclonus Myoclonus Ataxia Syndrome (OMAS), maintain a support network for patients and caregivers, and fund research for a cure.

Vision

Our vision is simple; enacting programs and research that will enable every OMAS patient to have a normal and productive quality of life.

Goals

1.We will be the resource to assist any OMAS anywhere in the world to find the best resources according to their specific needs. We strive to find OMAS specialists in their geographical area, provide resource materials in multiple languages, and be the primary social media platform for caregivers to share and collaborate on their OMAS needs.
2.We will continue to expand the capabilities of the OMAS Patient Registry. Our registry is currently the largest collection of OMAS patients' data. We strive to expand to other languages and offer new surveys for specific research endeavors. We also continue to pursue researchers who want to partner with our organization in addressing needs of the OMAS community.
3.In addition to focus on our OMAS Patient Registry, our other core program that will continue to receive our full attention is the International OMAS Workshop. As the co-host of this biennial workshop, we strive to bring the best and brightest researchers and clinicians to the three day medical workshop at our meeting venue in England.

Cypress TX | EIN: 45-4696128

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

20902 Pricewood Manor Court,
Cypress TX 77433

Mail donations to: P.O. BOX 2899,
Cypress TX 77410

https://www.omslifefoundation.org

Omslife Foundation Inc.

Mission

Our mission is to raise awareness of Opsoclonus Myoclonus Ataxia Syndrome (OMAS), maintain a support network for patients and caregivers, and fund research for a cure.

Vision

Our vision is simple; enacting programs and research that will enable every OMAS patient to have a normal and productive quality of life.

Goals

1.We will be the resource to assist any OMAS anywhere in the world to find the best resources according to their specific needs. We strive to find OMAS specialists in their geographical area, provide resource materials in multiple languages, and be the primary social media platform for caregivers to share and collaborate on their OMAS needs.
2.We will continue to expand the capabilities of the OMAS Patient Registry. Our registry is currently the largest collection of OMAS patients' data. We strive to expand to other languages and offer new surveys for specific research endeavors. We also continue to pursue researchers who want to partner with our organization in addressing needs of the OMAS community.
3.In addition to focus on our OMAS Patient Registry, our other core program that will continue to receive our full attention is the International OMAS Workshop. As the co-host of this biennial workshop, we strive to bring the best and brightest researchers and clinicians to the three day medical workshop at our meeting venue in England.

Cypress TX | EIN: 45-4696128

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

20902 Pricewood Manor Court,
Cypress TX 77433

Mail donations to: P.O. BOX 2899,
Cypress TX 77410

https://www.omslifefoundation.org

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Records Retention Policy:No

SCORE0%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
0%	Records Retention Policy:No
0%	Tax Form Disclosed on Website:No

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Omslife Foundation Inc.

Mission

Vision

Goals

Omslife Foundation Inc.

Mission

Vision

Goals

Beacon Report