Support Charity Navigator

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Wishes for Elliott

Mission

We work collaboratively to accelerate the pace of science on SCN8A and related disorders in order to bring hope and improved outcomes for all those living with rare epilepsies and their families.

Vision

Those living with SCN8A and their families are the heartbeat of our mission. Their future and our hope inspire a network of support, uniting a global team of researchers, clinicians, epilepsy leadership groups, and pharmaceutical companies. Collaborating for a cure, we unite in our mission to advance the science of SCN8A, see improved outcomes and quality of life for everyone touched by SCN8A and other rare epilepsies.

Goals

1.To set global SCN8A standards, enhance diagnostic precision, & promote data-driven treatments. Committed to advancing the science of SCN8A, bridging knowledge gaps, & building scientific consensus.
2.To refine DEE healthcare tools, measure 'inchstones' of progress, & develop new metrics. Current tools miss subtle progress; we're engaging industry & lobbying FDA for robust, validated methods.
3.To empower SCN8A research, unify stakeholders, and bridge lab-life gaps. Silos hinder solutions; our efforts & 8-year registry drive innovation, facilitating G/LOF research & tailored therapies.

WASHINGTON DC | EIN: 47-1822559

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1234 CRITTENDEN ST NW,
WASHINGTON DC 20011-4431

HTTPS://SCN8AALLIANCE.ORG/

202-599-0444

Wishes for Elliott

Mission

We work collaboratively to accelerate the pace of science on SCN8A and related disorders in order to bring hope and improved outcomes for all those living with rare epilepsies and their families.

Vision

Goals

1.To set global SCN8A standards, enhance diagnostic precision, & promote data-driven treatments. Committed to advancing the science of SCN8A, bridging knowledge gaps, & building scientific consensus.
2.To refine DEE healthcare tools, measure 'inchstones' of progress, & develop new metrics. Current tools miss subtle progress; we're engaging industry & lobbying FDA for robust, validated methods.
3.To empower SCN8A research, unify stakeholders, and bridge lab-life gaps. Silos hinder solutions; our efforts & 8-year registry drive innovation, facilitating G/LOF research & tailored therapies.

WASHINGTON DC | EIN: 47-1822559

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1234 CRITTENDEN ST NW,
WASHINGTON DC 20011-4431

HTTPS://SCN8AALLIANCE.ORG/

202-599-0444

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:No

SCORE0%

Records Retention Policy:No

SCORE0%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
0%	Financial Statements:No
0%	Records Retention Policy:No
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Wishes for Elliott

Mission

Vision

Goals

Wishes for Elliott

Mission

Vision

Goals

Beacon Report