Support Charity Navigator

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FSHD Society

Mission

The FSHD Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSHD Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.

Abington MA | EIN: 52-1762747

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1035 Bedford Street, Suite 103 #1073,
Abington MA 02351

https://www.fshdsociety.org

781-301-6060

FSHD Society

Mission

Abington MA | EIN: 52-1762747

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1035 Bedford Street, Suite 103 #1073,
Abington MA 02351

https://www.fshdsociety.org

781-301-6060

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

FSHD Society

Mission

FSHD Society

Mission

Beacon Report